Attitude and Risk Perception of Dementia in Older and Middle-Aged Adults: A Qualitative Study

The rapidly increasing population of older adults in India posits a huge public health challenge. It is, therefore, essential to focus on the cognitive and neuropsychological health of older adults. Currently, there have been limited attempts to understand dementia and rehabilitation from the lens of the target population. Therefore, the present research, aims to understand the perspectives of dementia among elderly in the community. The participants were probed to understand their knowledge and attitude towards dementia prevention and care. Moreover, an understanding about psychological concerns of older adults, attitude of society towards dementia and reluctance towards receiving mental health care was also gauged. Data was analyzed using thematic analysis. A need for up-to-date information regarding dementia was expressed. Further, need to focus on introducing patient friendly interventions and reducing stigma was also felt. Opinions about treatment, prevention and risk factors were doubtful. Fear, despair, and guilt were common feelings associated with dementia. The findings bring to light the expectations for prevention, care, concerns, and reluctance of older adults related to dementia rehabilitation and care.