OPEN ACCESS

PEER-REVIEWED

Case Study

| Published: March 31, 2020

Impact of disability on family: a case study on muscular dystrophy

Jennifer Nila Vijayakumar

M.Phil. Clinical Psychology Scholar, Department of Clinical Psychology, Institute of Mental Health, Kilpauk, Chennai, India Google Scholar More about the auther

, Dr. V. Smitha Ruckmani

Associate Professor and Head of Department, Department of Clinical Psychology, Institute of Mental Health, Kilpauk, Chennai, India Google Scholar More about the auther

DIP: 18.01.091/20200801

DOI: 10.25215/0801.091

ABSTRACT

Muscular Dystrophy refers to a group of disorders of progressive muscular degeneration and weakness. It leads to loss of strength of the skeletal muscles that control movement. The impact of muscular dystrophy is not only limited to physical disability, but it also impairs cognitive functions. Aim: The current study aims to understand the impact of children with muscular dystrophy on family. The specific areas explored in the study include struggles in providing physical care, financial burden, caregiver’s health, career adjustments, psychological burden and limitations in social activities. Method: The study focused on the family of two boys with muscular dystrophy. A semi-structured interview schedule was used to gather data about how a family coped with muscular dystrophy in two children. Results: The findings of the study showed that physical disability and the consequent cognitive impairment has a significant negative impact on family. Conclusion: The impact of disability on family due to muscular dystrophy is significant. The primary concerns in terms of impact is found to be on caregiver’s health, financial and psychological burden.

Download Full Text
Responding Author Information

Jennifer Nila Vijayakumar @ nilajennifer@gmail.com

Find On

Article Overview

ISSN 2348-5396

ISSN 2349-3429

18.01.091/20200801

10.25215/0801.091

Download: 8

View: 323

Published in   Volume 08, Issue 1, January-March, 2020