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Comparative Study

| Published: October 29, 2018

Parenting a Child with Autism: The Lived Experiences

Yashvi Panjrath

(Department of Psychology, Jesus and Mary College, University of Delhi, India Google Scholar More about the auther

, Dr. Shefali Mishra

Assistant Professor, Department of Psychology, Jesus and Mary College, University of Delhi, India Google Scholar More about the auther

DIP: 18.01.026/20180604

DOI: 10.25215/0604.026

ABSTRACT

Even though we have considerable amount of research focusing on the parents of children with Autism, majority of these studies have primarily attempted to explore the stress and burden that these parents experience. There are very few attempts towards capturing the specific experiences of parents who have children with autism. The present study explored the socio-psychological realities of parents with children having ASD to gain insight into the lived experiences of these parents. The Zarit Burden interview was administered on 20 parents of children with ASD. A ZBI cut-off score that was 40 (moderate to severe burden) helped identifying 10 caregivers with high caregiving burden. A semi structured interview was further conducted to get a detailed account of the experiences of these parents. Qualitative analysis revealed major themes such as an inherent loss of control, fear of the future, shrinking self and emotional transformations. Although parents found the battle challenging, there were also signs of strengths they gained in the course of parenting child with ASD. Findings from this study may be helpful in developing programs to address life qualities of these parents.

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Yashvi Panjrath @ yashvipanjrath@gmail.com

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Article Overview

ISSN 2348-5396

ISSN 2349-3429

18.01.026/20180604

10.25215/0604.026

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Published in   Volume 06, Issue 4, October-December, 2018